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12.30.2006
middle of no where Iowa family farm
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12.29.2006
mayo clinic update
We are in our last day of testing at Mayo. Lots of information and after meeting with the surgeon and doctor they have decided that it would be better to pursure another donor. Ben is of course healthy and able, but the positve crossmatch reaction (my antibodies react with his cells) is really severe and would require 2.5 weeks of pre transplant treatment (similar to kidney rejection treatment in seattle), removal of my spleen and still no guarrantee they would do the transplant. So we are looking into other donors and some of my family members have graciously come forward to be evaluated to donate a kidney. Mayo is going to test my their blood for the same positive crossmatch and go from there. It has been a long couple of days, but we have to been able to get out in downtown rochester. We should know more in another couple of weeks. Dea
12.27.2006
Mayo is Crazy
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Ben and I are at Mayo Clinic. This place is huge, we each received a colored bag (green for transplant and orange for donor) and then they set us off in opposite directions. I did pass Ben once today. Very modern and beautiful place. Everthing is connected via underground marble subway lined with retail and coffee shops as far as hospitials go it pretty nice. Everything is planned to the minute, LG then go to LA, charlton or eilson...you get the lingo of the billon different buildings pretty quick. I have some great pics from the holidays to post when I have a little more time. Dialysis again today, skipping once was ruff and christmas day and the day after I was feeling pretty crappy so I am going again today to get all caught up! It has been a whirlwind tour so far.
12.24.2006
snowing in anchorage
12.23.2006
Happy Holidays!
12.22.2006
a super duper cool picture!!
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This is a great time lapse picture of how low the sun is in winter. this is what is looks like for 3 hours of daylight, sunrise-sunset colors the entire time.
12.18.2006
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12.15.2006
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12.13.2006
12.12.2006
I had the most amazing phone call last night. Dr. Clausen is the head of chemistry department here at UAF, some of you might know him, he is the professor consulted in the book Into the Wild. That is not the amazing part though, yesterday his wife called me on the phone. I have never met or even seen her before. She says " so I here you might need a kidney and surgery is no big deal, you go to sleep, wake up and it is over..." at first I am like this lady is nuts, but of course at the same time I think that she sounds just like me (about the surgery part). It was the most surpising phone call, we chatted a little while and she ended with "I'm as serious as a heart attack, you call me."
Seriously, I have the greatest life. I am lucky to have so many generous and caring family and friends. Some I know well and some I barely know at all. Anyway the whole thing just blew Ben and I away and I thought I would share the story. -Dea
Seriously, I have the greatest life. I am lucky to have so many generous and caring family and friends. Some I know well and some I barely know at all. Anyway the whole thing just blew Ben and I away and I thought I would share the story. -Dea
12.11.2006
12.05.2006
ben's photo blog is still going strong, it somehow did not transfer when changed
to the beta blogger.
to the beta blogger.
12.04.2006
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